friends of FSH Research

Funding Research for
FSH Muscular Dystrophy Dots

10 Years of Creating Hope

The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

11th Annual Auction and Gala


Latest News

Oh what a night!!!

— January 26, 2015

Friends of FSH Research raises a record $270,000 at annual auction and gala.

Research Outlook 2015

— January 20, 2015

Looking back on the research trends of 2014 helps us focus for the coming year.

Research Funding: Dr. Maura Parker will improve cellular and animal models of FSHD

— January 12, 2015

Dr. Parker has had her funding renewed based on approval of a progress report and submission of a new grant for the…

Research Funding: Drs. Aihara and Kyba want to know their enemy

— January 11, 2015

Drs. Aihara and Kyba lay out a plan towards solving the crystal structure of DUX4.

Research Funding: Dr. Eric Wagner aims to stop DUX4 from being made

— January 7, 2015

Dr. Wagner and a graduate student, Natoya Peart, have an innovative approach to reduce DUX4 levels.

Friends Featured in Kirkland Living Magazine

— December 28, 2014

Friends of FSH Research will be featured in the upcoming issue of Kirkland Living Magazine.

Circle of FriendsIntroductionFunds RaisedFunds SpentCollaborationResearch OutputResearch OutputResearch OutputThe NeedWhat is FSHDWhat is FSHDWhat We DoWhat's NextWhat's Next


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"Hopefully one day FSHD will be stopped in its tracks. I know that there is still a long road ahead, with many milestones to pass but the journey isn’t quite so scary knowing that I am not alone and that there are those willing to keep pushing ahead, guiding the way until we find the key to unlock that final door."

- T. Pilato