Facioscapulohumeral Dystrophy, or FSHD, is a degenerative muscular disease.
It is the most prevalent form of Muscular Dystrophy
...and yet there is no treatment or cure.
Only because of funding from individuals through organizations like
friends of FSH Research
has much progress been made to determine what specific genetic changes are actually causing the disease.
Friends of FSH Research and the Muscular Dystrophy Association announced a $200,000 collaborative research grant "Therapeutic Targets for Facioscapulohumeral Muscular Dystrophy (or FSH)" Read more
The University of Washington / Seattle Children's Department of Radiology is looking for both healthy subjects and individuals with FSHD ages 6-50 to take part in a magnetic resonance imaging (MRI) research study to see if MRI can be used to evaluate disease severity. for further information please see the flyer.
You can help immediately by simply signing this petition demanding for increased NIH support for a disease that affects over 25,000 people in the U.S. alone. Every voice matters.
Advancing Novel Partnerships
July 16 — 18, 2010
GuideStar®