FSHD January 25th Auction
10 Years of Creating Hope
Seattle Research Presentation
FSH Society

Friends of FSH Research & FSH Society host presentations May 17th at the Fred Hutchinson Cancer Research Center in Seattle.

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Amazon Smile Giving Away Free Money
Amazon Smile

Friends of FSH Research recently received its first check from Amazon.com.

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Current Research Presentations
Jeff Chamberlain PhD

Jeff Chamberlain & Seth Friedman will be presenting some of their latest research at the Fred Hutchinson Center. The presentations will also be live-streamed.

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Travel Grants Now Available

Friends of FSH Research invites researchers to apply for travel grants of up to $2,000.

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Data Suggest Oxidative Stress a Dominant Pathway For FSHD
Michael Kyba PhD

Published results from Michael Kyba's lab, partly funded through a two-year grant from Friends of FSH Research.

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10th Anniversary FSH Auction
10th Anniversary FSH Auction

The 2014 Friends of FSH Research auction raises an amazing $196,817.

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Friends Of FSH Research Announce Call For Proposals
Friends of FSH Research

On the heels of the 10th anniversary auction, Friends of FSH has issued a call for research proposals to build upon the amazing gains that have been made in the past few years.

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Regeneration of Human Muscle in Mice Enables Accelerated Research
Kathryn R. Wagner MD PhD

Dr. Kathryn R. Wagner recently announced study findings showing the successful development of a humanized preclinical model for FSHD, providing scientists with a much needed tool to accelerate novel therapeutic research and development.

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What We Do

Directly support FSHD research through grants made possible largely through your participation in our annual auction. The all-volunteer staff spend countless hours to create a single fun and exciting evening for a very serious cause: Finding the cause and cure for FSH Muscular Dystrophy.

Only because of funding from individuals through organizations like Friends of FSH Research has much progress been made to determine what specific genetic changes are actually causing the disease. Read more About Us. Read also about the many ways you too can contribute in finding a cure.

Thanks to Ann & Nancy Wilson of HEART
for providing the special
Gala Centerpieces
Fishing for a Cure with heART
10 Years of Creating Hope
UW Medicine's Dr. Daniel Miller Talks About FSHD
See Also: Challenges in unraveling FSHD

Our Donors

Please take a moment to view our generous donors.

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Thank You For Helping
GiveBIG 2014

On May 6, The Seattle Foundation once again sponsors its Give BIG day. Matching funds were contributed by various organizations, and the more you give on May 6, the larger a share will be directed toward FSHD research.


Support Friends of FSH Research while shopping on Amazon.com.
Amazon.com will donate 0.5% of your qualifying purchases. Just start your shopping at smile.amazon.com

P2 Nutrition

20% of your purchase of P2Life Performance Nutrition products goes towards supporting FSHD research.
"The body can achieve amazing things when you feed it correctly. P2Life focuses on providing your body the nutrition it was meant to have."
Learn more.

Other Ways To Share
Spread the word about our organization and our cause.
GoodShop Logo

How can I help raise $100 this month?

share Goodshop To-Go
with 10 friends

each friend raises $10
through Goodshop


Eat at a GoodDining Restaurant and earn up to 6% for Friends of FSH Research.

Sign up here.

You can make a difference
Connecting people with researchers

If you are a patient, register with the National Registry for MD and FSHD Patients in order to participate in research, and encourage more research in this area.