friends of FSH Research

Funding Research for
FSH Muscular Dystrophy Dots

10 Years of Creating Hope

The mission of the Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

11th Annual Auction and Gala


Upcoming Events

The Roaring 20s 11th Annual Gala and Auction

— January 24th, 2015

The event of the year is fast approaching! Get your tickets today.

FSHD Research Progress Workshop

— January 23rd, 2015

The Friday afternoon before our annual auction we'll be hosting a research progress workshop for researchers, patients, and donors. All are welcome. Please RSVP.

Latest News

University of Waterloo Student Describes FSHD as a Disease of Losses

— November 19, 2014

University of Waterloo senior Schuyler Schmidt researched FSHD for her class, and had never heard about the disease…

Why is FSHD so variable?

— October 30, 2014

Spoiler alert: it's because of epigenetics.

Extracting the Big Picture from the 2014 International FSHD Meeting

— October 21, 2014

This past weekend, the International FSHD Research Consortium was held in San Diego alongside the American Society…

I Don't Like the Word Facioscapulohumeral

— September 22, 2014

FSH Muscular Dystrophy has always suffered from an obscenely long and latin name. Learn about how we're…

Friends of FSH Research Hires Scientific Development Director

— September 17, 2014

Friends of FSH Research has hired Dr. Gregory Block to bridge the gap between fundraising and science.

Friends of FSH Research 2014/15 Case Statement

— September 16, 2014

Read about Friends of FSH Research new strategic direction.



raised to date


Attracted to research

Check Out Our Impact >>

"Hopefully one day FSHD will be stopped in its tracks. I know that there is still a long road ahead, with many milestones to pass but the journey isn’t quite so scary knowing that I am not alone and that there are those willing to keep pushing ahead, guiding the way until we find the key to unlock that final door."

- T. Pilato