friends of FSH Research

Funding Research for
FSH Muscular Dystrophy Dots

10 Years of Creating Hope

The mission of the Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve our goal, we actively manage a portfolio of research that supports a pipeline for drug discovery. Our board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD. Learn more >>

11th Annual Auction and Gala

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Upcoming Events

We're Moving Muscles for Research!

— November 30th, 2014

Join Friends of FSH Research and Mariel Colella at the 2014 Amica Insurance Seattle Marathon

Latest News

Extracting the Big Picture from the 2014 International FSHD Meeting

— December 31st, 1969

This past weekend, the International FSHD Research Consortium was held in San Diego alongside the American Society…

I Don't Like the Word Facioscapulohumeral

— December 31st, 1969

FSH Muscular Dystrophy has always suffered from an obscenely long and latin name. Learn about how we're…

Friends of FSH Research Hires Scientific Development Director

— December 31st, 1969

Friends of FSH Research has hired Dr. Gregory Block to bridge the gap between fundraising and science.

Friends of FSH Research 2014/15 Case Statement

— December 31st, 1969

Read about Friends of FSH Research new strategic direction.

One million Euro for FSHD Research Pioneer

— December 31st, 1969

Silvère van der Maarel of Leiden University was awarded €1 million from the Princess Beatrix Fund for his…

 
 

$2,427,546 

raised to date

$15,000,000

Attracted to research

Check Out Our Impact >>

"Hopefully one day FSHD will be stopped in its tracks. I know that there is still a long road ahead, with many milestones to pass but the journey isn’t quite so scary knowing that I am not alone and that there are those willing to keep pushing ahead, guiding the way until we find the key to unlock that final door."

- T. Pilato