Research: Links & Resources

Fields FSHD and Neuromuscular Research Center

University of Rochester and Leiden University

Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center at:

University of Rochester
University of Washington
University of Iowa
Children's National Medical Center (Washington, DC)

Canadian FSHD Network — Anne Harland

39 Kirkwood Crescent
Caledon, Ontario
L7C 1B9
Canada

905 843-1403

Mobility
(as in the important task of keeping mobile and fit)

CIS Aquatics Community Integrated Services Aquatic Therapy

Medical Devices
(for informational purposes only with no implied endorsement)

Mobility Devices Whitepaper by Brian Glaister of Cadence Biomedical (formerly EETech). Also refer to an inspiring article in OandP on their human-powered kinetic orthosis.
Rebound Ankle Brace
MagicWheels
WalkAide
BlueRocker
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