Friends of FSH Research was formed by the family and friends of Brian Colella, who was diagnosed with Facioscapulohumeral Dystrophy, or FSHD, in 2004. As an independent, 501(c)(3) non-profit tax-exempt organization, our goal is to raise money to help fund researchers trying to decode the genetic mysteries of FSHD so that a treatment or cure can be developed.
Our
organization was created because there is a need for
additional funds for FSHD research. Funding for FSHD
research from organizations that focus on muscular dystrophy
and from the National Institutes of Health has been woefully
inadequate. Although millions of dollars are raised annually
for Duchenne muscular dystrophy (DMD) and amyotrophic
lateral sclerosis (ALS, or Lou Gehrig's Disease), little
attention has been paid to FSHD. To stimulate new research
and support for current researchers in this field, it was
essential that a fundraising organization be founded.
We are excited by the opportunity to help those affected by this disabling condition by funding scientists researching FSHD, and we feel very lucky to have established a partnership with the Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center at the University of Washington. Please join us as we seek a cure to FSHD.
Pacific Northwest Friends of FSH Research depends upon private donations and grants; we need your donations and your support. Please consult with your employer for matching funds; all donations will be acknowledged for tax purposes.
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