Friends of FSH Research is a small volunteer run organization dedicated to stimulating and funding Facioscapulohumeral Muscular Dystrophy research. The goal of our website it to provide you with information about our work and events, and information regarding the research we are funding.

If you have questions regarding FSH research please submit it here. We will make every attempt to post the answers to your questions.

Please let us know if you found the information you were looking for on our website and if there is other information you would like to see here in the future.