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Facioscapulohumeral
Dystrophy, or FSHD, is a degenerative muscular disease for which
there is no treatment or cure.
Mission Statement
“Pacific Northwest
Friends of FSH Research is a 501 (c) (3) organization working to
impact the lives of people affected by FSH Muscular Dystrophy by
financially supporting FSHD research in search of a treatment or
cure.”
Purpose Statements
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To
encourage, promote and fund increased scientific and clinical
research of Facioscapulohumeral Dystrophy, or FSHD.
To conduct
fund raising efforts and solicit grants and contributions from
individuals, private foundations and others, in order to sponsor
research to help advance the study and understanding of FSHD, with
the goal of identifying treatments and ultimately, a cure for the
disease. -
To
disseminate information about FSHD and encourage additional public
support for FSHD research by raising public awareness of the need
for more research funding.
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